Can you believe that? I was actually going to list my son's newfound high pitched scream as annoying. After listening to it all day yesterday, (he does it just for fun) I thought it was annoying. That is until I read this. EBing a Mommy wrote that post about her son turning 2. Her son that has a rare skin disorder. Her son that is 2 years old and has a tracheostomy. He can't speak.
This right here is what spoke to me the most... "I wish you had your eyesight. I wish you could speak. I wish you could wear normal clothes without bandages. I wish you would lay next to me and cuddle without me worrying about giving you a blister. I wish you could wear shoes. I wish you could go outside, ride your bike, go to the park and slide down the slide. I wish I could throw you in the car and go get a snowball together. I know all of these things don't matter to you, because you don't know any better..."
Really? How horrible do I feel right now, thinking something as silly as my little boy's scream is annoying. My healthy little boy. My little boy that I can take outside, to the park, to slide... who I can cuddle with
It's a question nobody even wants to ask, for fear of the answer. Why am I the "lucky" one? Why did I get a perfectly healthy child, while Courtney has to struggle with watching her son suffer daily. The answers, I don't think we will ever know, not in this life anyways. All you can do is thank God your child is healthy, and pray for those who aren't.
I can guarantee you the first time Parker screams tomorrow I'm going to smile. I'm going to run to him and pick him up and give him the biggest hug and tell him how
For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future. -Jeremiah 29:11
Thank you for that new prospective this morning. I needed that. I sure do miss you!
ReplyDeleteMy little neighbor girl has the same disorder, and although it's not AS severe, it's still heartbreaking to know what these little kids go through. She's now in second grade and the torment she gets for wearing bandages, always having her skin covered, and not getting to play like normal kids is just saddening. Hopefully someday they will find a cure, just like every other disease and disorder.
ReplyDeleteHi, I'm a new follower I just found your blog. Your son is SO SO cute! This is a great post, thanks for that reminder to always be grateful :)
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